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Saturday, May 15, 2010

Second opinions

From listening to what little hope the doctors here had given us and with my family encouraging me to get a second opinion or speak to a specialist i started making calls. I called St Jude and left a message my drs there. After speaking with a few different specialist offices i was basically told i needed to be referred by my ob to them. So i called my ob and they called a specialist at UAMS in Little Rock. They scheduled a appt for me via video conference for June 24th, i was absolutely not waiting for that, unacceptable. So the next day St jude returned my call and they had contacted a perinatologist at Lebonheurs Childrens hospital and told me they were waiting for my call. I called there and they scheduled me an appointment! So a few days later Jaramie and Stef loaded me up in the the back seat of my car and we headed that way. When we got there they checked my vitals and did an u/s (ultrasound). The baby was doing fine, 163bpm(beats per min)! The dr then came in, he looked at the length of my cervix, the placenta, and the fibroid tumor i forgot to mention earlier. He said things look fine bc my placenta was not attached to the tumor, it was attached above it. He also said i should be able to have a vaginal delivery bc the tumor should not get in the way. They also said that the baby was breach, which could change several times. The tech tried to see what the sex was but the cord was right btween its legs lol, maybe next time! I asked if there were any pockets of fluid around the baby's mouth and she looked, thought there might be but then realized it was the umbilical cord. She measured what fluid there was and it was .5cm afi (amniotic fluid index) better than none, normal is 14-20 cm i think. That could change anytime, i have to drink 64oz of fluid a day, the baby pee's and that is where the amniotic fluid comes from. So pee on baby pee on, cheers! We then were led to a conference room, i was in a wheelchair, i dont walk at all really. Jaramie bless his heart is not the best wheelchair driver, i think that may be his only fault. I love him so much, he has barely left my side. So once we were in the room the dr came in, a nurse, and a genetic counselor. The dr, a perinatologist Dr. Giancarlo Marri, began to tell us our options. We could induce, not an option, we could continue on bedrest where they would admit me there in memphis at 24 weeks which is July 7 2010. We then would want to make it to 34 weeks where we would then deliver. This in hopes that my sac would reseal, Jaramie asked him if he had ever seen this before, he said yes, a woman did after 7 or 8 weeks. Another option was he could go in and do an amniopatch. Where he would put a patch on the sac where the tear was. This he did not recommend that we do bc he said there are alot of risks involved and it could mask a real infection. At this point Jaramie and i just want to leave it in Gods hands. We could still have a relatively healthy child even if i didnt reseal. Anything is possible through God. 18-24wks i believe is when the lungs are forming, so hopefully there will be fluid pockets around the baby's mouth during those weeks. Please keep us in your prayers. The dr told us that around 20 weeks they would do a fetal MRI which is not harmful to the baby or me, to check all of the baby's organs. So i go back to Lebonheurs May 24th for and checkup where i believe they will do another us to measure the fluid and measure and chart the baby's growth. At this visit the baby was in the 40th percentile in growth. He/she weighed 4 oz! Little toot! But over the next 4 weeks the baby will double in size! Im excited bc the week of the May 24th ill be 18 wks, 2 wks after that ill be 2o where they will do the fetal MRI, then 4 wks after that they will b admitting me! I cant wait! I feel better being in the hospital bc i get monitored regularly and get plenty of iv fluids.

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